Morgan Gleason was 11 years old when diagnosed with Juvenile Dermatomyositis — a systemic, autoimmune inflammatory muscle disorder affecting just 3 out of every 1 million children. Last week, Morgan, now 15, was admitted to the hospital after contracting meningitis from an infusion.
As an admitted patient, Morgan was exposed to a seemingly disjointed system of morning rounds, inconsistent exams, and physician visits that not only prevented her from resting, but often excluded her from the prognosis discussions. Since she wanted to be heard, she turned to social media.
“After four nights in the hospital, I made this video expressing my frustration over the lack of sleep you get while admitted,” Morgan explained on her website.
In the video, which has received over 37,000 views on You Tube, Morgan delivers a scathing monologue directed to her providers and the system of hospital care. ““I would like to hear what you are about to do to me. If you’re about to poke me with a freaking needle, tell me. If you’re about to cut off my arm, tell me,” says Morgan. “I am the patient and I need to be heard.”